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03-30-2008, 11:00 AM
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#1
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Give me a museum and I'll fill it. (Picasso) Give me a forum ...
Join Date: Jul 2006
Posts: 11,401
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Chronic fatigue syndrome
One of my friends has recently been diagnosed with chronic fatigue syndrome. There is a consensus in the literature that this is a real entity, occurs in approximately 4 per 1000 people, and is distinct from other diseases. Unfortunately, despite a ton of research, a specific cause has not been found, no specific treatment seems to help and most people apparently don't recover.
This is all very depressing. My friend has been unable to work for months. She certainly has many potential stresses in her life. I'm at a loss as to what I can do to support her, apart from chicken soup and kibbutzing.
Has anyone had ***, or dealt with it in a friend or family member?
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03-30-2008, 11:17 AM
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#2
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Recycles dryer sheets
Join Date: Mar 2007
Location: Tampa/St Petersburg, FLA
Posts: 314
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03-30-2008, 12:11 PM
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#3
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Give me a museum and I'll fill it. (Picasso) Give me a forum ...
Join Date: Apr 2003
Location: Hooverville
Posts: 22,983
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Quote:
Originally Posted by Meadbh
One of my friends has recently been diagnosed with chronic fatigue syndrome. There is a consensus in the literature that this is a real entity, occurs in approximately 4 per 1000 people, and is distinct from other diseases. Unfortunately, despite a ton of research, a specific cause has not been found, no specific treatment seems to help and most people apparently don't recover.
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Is the diagnosis solely clinical, or is there a consistent configuration of Lab results?
Ha
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"As a general rule, the more dangerous or inappropriate a conversation, the more interesting it is."-Scott Adams
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03-30-2008, 01:39 PM
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#4
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Thinks s/he gets paid by the post
Join Date: Jan 2007
Posts: 1,238
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Any chance she has Lyme disease? Any other weird (sometimes come-and-go) symptoms?
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03-30-2008, 03:45 PM
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#5
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Thinks s/he gets paid by the post
Join Date: Jul 2007
Posts: 2,487
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A buddy of mine was diagnosed with *** in college. He just rested for a few months and was back in the saddle and did fine after that. That has been over 20 years ago though, and I haven't really kept up with him, so I don't know how he is doing today. I don't know if the diagnostics for *** have changed either, over that period of time. At the time, I believe it was still a rather new diagnosis/disease/whatever we call it.
R
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03-30-2008, 05:37 PM
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#6
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Moderator
Join Date: Sep 2006
Posts: 4,006
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My sister has CFIDS. She's been diagnosed for oh, I'd say maybe 15 years or so now. It certainly is a disabling disease. She no longer works and is on disability.
One thing that the doctors recently discovered is she also has severe sleep apnea. Since she has been on a bi-pap (sp?) machine, her energy level has changed significantly. She still is very tired but nothing like she was. It's like she's a new person. I would definitely have your friend get a sleep study done, if appropriate in her case.
I would also suggest she join a CFID support group on-line.
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simple girl
less stuff, more time
(55, married; Mr. Simple Girl, 59. FIRED 12/31/19!)
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04-04-2008, 05:24 PM
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#7
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Moderator Emeritus
Join Date: Feb 2004
Location: minnesota
Posts: 13,228
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My sister has a friend with chronic fatigue. For her the severity seems to come and go. When she is in a bad spot just having my sister around to be entertaining and take her mind off her illness is helpful.
So, be a friend and spend time with her not talking about illness but about other things.
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No more lawyer stuff, no more political stuff, so no more CYA
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04-04-2008, 05:30 PM
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#8
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Full time employment: Posting here.
Join Date: Apr 2006
Posts: 880
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I have a good friend that was diagnosed with *** and fibromyalgia. She is able to still work but she cannot exercise or do anything too strenuous or it wipes her out for the next few days. Gentle yoga and mild pilates are about the best exercise for her. She has tried massage, acupuncture and other types of treatments, but cannot any longer due to cut backs in her health plan. One doctor told her that her adrenal gland was shot and that was why she lacked energy.
I really feel for her - I don't know what I would do if I couldn't have an active life.
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