My mother died last year, two years into a battle with multiple degenerative brain diseases (ALS, frontotemporal dementia). Dad had LTC, which thankfully covered what ended up being 10 hrs of home health care a day (though he used less on weekends). She didn't need *nursing* until about the last week of her life, and we made very very very clear from the beginning that there would be no heroic measures, and no feeding tube. We got hospice involved at a point that we thought was too early, but she died six weeks later, at home, having never once gone into a hospital or facility.
I had done my research, and knew what we were dealing with (and that there wasn't the slightest bit of hope that she'd ever get better), so it was easy for me to stick to my guns, even as my dad wavered. But families who are hit with a parent's medical emergency, or who don't feel sure of their position, can unfortunately end up really being pushed by doctors and hospitals. Thankfully Mom's doctor was in total agreement with our decisions.
But it all sure makes you hope you just wake up and find yourself dead one morning, as she used to say.