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Old 03-14-2012, 01:25 PM   #21
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google piriformis stretch. Try that and some extended cold water soaks in the tub. The water depth should be from (above) the belly down. Water should be 55 to 60 degrees F. (You might eventually learn to think of these soak sessions as invigorating.) You can add ice as necessary and might even target the hip areas with it.
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Old 03-14-2012, 02:48 PM   #22
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google piriformis stretch. Try that and some extended cold water soaks in the tub. The water depth should be from (above) the belly down. Water should be 55 to 60 degrees F. (You might eventually learn to think of these soak sessions as invigorating.) You can add ice as necessary and might even target the hip areas with it.
Why cold baths? I would have thought that hot baths would be the better choice. OTs and PTs I believe also use contrast baths alternating between very hot and very cold water soaks to free up joints. I am wondering if it would also work to stretch a muscle. I am going to wednesday night trivia contest tonight and will ask an OT who is on my team.
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Old 03-15-2012, 08:07 AM   #23
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cold baths -- he likely needs to reduce inflammation in the entire hip area. Repeated, prolonged cold/ice bath will probably help. Heat and/or contrast will increase blood flow and probably inflammation along with it.
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Old 03-15-2012, 11:40 AM   #24
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Have you had any deep tissue work to the piriformis area? (deep pressure point massage type of therapy) Any ultrasound to the piriformis area?

So sorry for your ongoing pain. I lived with chronic pain for about 15 years, so I understand.
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Old 03-15-2012, 11:18 PM   #25
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I have been doing a bit of googling about Piriformis Syndrome and find lots of information. Some of it in disagreement with other information. This article in medfaxx looks pretty good.
Piriformis Syndrome - What Is It and How Do You Treat It | Articles
On the question of hot versus cold treatment there seems to be one side saying that it is primarily an inflammatory problem and so should be treated with heat and the other saying it is just a tight piriformis muscle and that the muscle can be stretched with specific exercises. The fact that Soupcxan's pain does not seem to be relieved with NSAIDs may, or may not be significant.
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Old 03-18-2012, 04:35 PM   #26
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Generally, my feeling is that ice packs reduce the pain, and heat either has no effect or makes it worse (inconsistent).

A couple of doctors bent my legs certain ways and said, no, not piriformis. When all this started, it definitely sounded like piriformis because it was usually so tender to the touch and usually only on one side. Now it is not tender, just this awful pain/discomfort feeling across both sides.

I can do all the piriformis stretches I find on google without difficulty or pain, but they don't seem to do anything for me.

I went to one massage therapist and that was quite painful due to the amount of pressure he used and the directions of the stretches.

Unfortunately I can't stop driving for 6 weeks - but I do know when I went on vacation for a week last year, I did no driving at all for 7 days and did a ton of walking, and still had the pain.

I guess I will keep the SI joint injection I have scheduled and see what happens. I can always go back for a piriformis injection (fun).
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Old 03-18-2012, 08:15 PM   #27
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That sure is a bummer.

Here is a story that may be relevant to your massage experience. Lena had a Swedish friend named Ingela who was a masseuse. I had some pain from playing the trombone, and she said " This will help," and dug a knuckle into a spot in my back. It was incredibly painful, and I essentially said "Get that woman away from me and don't let her near me again.". To this day we refer to that spot in my back as the "Ingela spot."

Later I went to a specialist, and he recommended that same knuckle thing, and explained that it was that painful because it was targeting the site if the inflammation. In other words, that pain indicated that it was what was needed.
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Old 03-18-2012, 09:21 PM   #28
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I had sciatica when I was in my 20's (now 59) and the pain was similar to what you describe. This went on for almost a year going to my doctor and trying anti-inflammatories, creams and some core exercises. I even got desperate and got a water bed hoping I could get comfortable. Heating pads, warm baths/hot tub seemed to provide the most relief.

I then purchased a new car which had very good seats and I notices that things started getting a bit better.

I started to review my lifestyle and I realized that I had changed jobs and the chair that in my new office was not very good. I got a different chair and things got even better.
I then realized that I was carrying my wallet in my back pocket and I made that change.
Now things were starting to get back to normal.

I also got rid of a old recliner that I had at home which was a bit too worn in.
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Old 03-23-2012, 11:27 AM   #29
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I need to look into the Mayo Clinic option more seriously. Are there any differences between their locations? The one in Arizona is probably closest me.
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Old 03-23-2012, 07:30 PM   #30
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Have you tried a Massage Therapist who does Neuromuscular Therapy? It sounds like the entire glute needs to be worked out, especially trigger points in glute min and glute med. that can radiate all the way up to the shoulder and all the way down the leg, sometimes mimicking sciatica. You can try two associations to find a therapist near you who has the NMT training, AMTA or ABMP. This will take anywhere from 3-5 sessions to feel better.
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Old 04-06-2012, 02:49 PM   #31
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Well that's great - the Mayo clinic doesn't think there's anything they can do & won't see me. I guess they are not interested in a healthy person who gets cronic pain at 30 with no cause, diagnosis, or treatment, and gets to look forward to the next +30 years of being in pain every day.
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Old 05-25-2012, 03:53 PM   #32
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Bumping this thread - finally got an appointment at Mayo in a few weeks.

Had an injection of steroids/anesthetic into my piriformis on one side but so far have not noticed any difference. The area is not painful to touch nor is it painful to the range of motions that the doctors have tested me on.

Also had a lumbar MRI while sitting (rather than laying down). I could feel the tingling during the scan but no disc problems were observed, so must non-discogenic.

The sensation I am getting now is more like pins and needles (like when your foot goes to sleep), aka paresthesia, across my butt and down my legs. It is very diffuse. Worse when sitting for a long time. Better when exercising (walking/jogging or weights). Better when sitting on ice packs. Until recently, it would go away if I lay on my back, but now that doesn't seem to work, which is a problem for sleeping. The most effective painkiller I've found for it is tramadol.

Interested in any other ideas you may have no matter how random they may seem. Neurological? Vascular? Rheumatological/allergies?
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Old 05-25-2012, 06:59 PM   #33
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Perhaps if you can map the tingly feeling, it might help them diagnose it when you have your appointment.
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Old 07-04-2012, 11:24 AM   #34
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Bumping this thread as I've been thinking about you and am wondering if there has been a diagnosis. Fingers crossed for a solution !
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Old 07-04-2012, 09:10 PM   #35
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I too have been experiencing the EXACT symptoms over pat 18 months. have tried just about the same things. Neurologist, Back.Pain Specialist, Chiropractor, ...last suggestion was injections, but have not tried yet. Everyone continues to say it is Periformis Syndrome but no clear answer. Going to a second Neurologist in Aug at th University Hospital... Running out of answers too.. I will keep following. I FYI. My original symptoms started after prolonged sitting at desk and automobile..
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Old 07-04-2012, 09:26 PM   #36
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What about acupuncture? You'd have to do it more than once - seems to work cumulatively sometimes.
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Old 07-05-2012, 12:10 AM   #37
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Still no answers. Lots of x-rays, MRIs, and EMGs but no clear cause. My gut says there is a muscle or bone that is pinching the sciatic nerve when I sit. My gut says there is a trapped nerve that needs to be surgically decompressed. I think part of the problem is that it is outside the spine and 95% of doctors only deal with the spine. Currently trying a higher dose of neurontin and going for a couple of facet joint injections in a couple weeks.

The upper back pain seems to be more muscular. Not sure why they would start spasming as I do plenty of stretches and exercises across the whole core. Will get some trigger point injections for the upper back at the same time as the facet joints.

Acupuncture and such are still on my list but since that is purely pain management, not the top priority.
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Old 07-05-2012, 09:49 AM   #38
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Soup. Good luck. I find it amazing that so few similar scenarios are found in the WWW searches. I guess that is why the Drs are so puzzled. Seems like these symptoms all get thrown into Fibromyalgia, Piriformis Syndrome etc. My last visit to the Rheumatologist to rule out Sjogrens Syndrome..often exhibited with dry yes and low water retention. We seem to be on parallel paths. maybe one will hit on something. Also of note.. In the past three months I have also started to get sever burning in my pinkey toe and top of foot with any shoes I wear. (All of my blood test show ok for diabetes) Last I do take status but stopped for six months with no diff on the pain ..and cholesterol went up. Keep us posted..I will too
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Old 07-05-2012, 10:49 AM   #39
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I assume the doctors have ruled out MS ? Have a friend who's only symptom was "pins and needles" in her calf on one leg.
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Old 07-05-2012, 11:06 AM   #40
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I went to a local hospital presentation recently on PAD (Peripheral Artery Disease) - a common circulatory problem due to narrowed arteries somewhere other than your heart (it it's your heart, it's CAD (Coronary Artery Disease). Anyway, the symptoms you are describing were listed on one of the slides (specific to butt pain). Might be worth asking about to rule it out. Best of luck.
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