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Old 07-05-2012, 12:01 PM   #41
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Sounds like some of the issues my best friend had for about 5 years. Finally, one of the doctors looked at her hip. Ooops! Time for a replacement. As it turns out, there was nothing wrong with her back (discs, sciatic nerve). I can't even imagine how much money she and her insurance company spent over the years trying to figure out what was going on.

All the pain was generated by a deteriorating hip. I guess they never thought to look because she is in her early fifties which meant that the hip started causing pain in her late forties.

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Old 08-07-2012, 10:19 AM   #42
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Soup: Its been a while since I have seen any update on your quest. I have still been looking too for a final resolution. A couple of things I have recently tried and another thought. So far everyone points to Piriformis Syndrome..and treatments to address that problem.
A) Saw Cardiologist and ruled out blood flow issues
B) Saw Rheumatologist to rule out Sjogrens , and other joint related items
C) Original MRIs still considered no back - spine issue.
1) 12 Chiropractic Visits.. Low to no benefit
2) Vitamin B Shots.. My blood work showed low.. 2 months.. no relief
3) Recent physical (1 week ago indicated very low testosterone--Dr indicated it was not the cause but did start a 90 day trial of injections) All caveats and risks explained 1st. Note after 1 day I personally feel way better but the pain persists.. We are hoping muscle strength may help.. More time in the gym for me too..
3) I have an appointment with the university hospital end of Aug..(Takes 8 weeks ) I hope to re-visit the entire process so far and maybe get another opinion.

LAST: Something I still need to pursue. There is another symptom very similar called WEAVERS BOTTOM Have you explored this possibility.. --

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Old 08-07-2012, 04:17 PM   #43
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No forward progress, I have found the pain is bothering me more while I sleep now which is really scary as until recently I at least had that as one place I could get away from it. It's a very intense, sharp pain right at my spine between my shoulder blades (exact location varies). Crazy bad.

The sitting pain persists as well. Lately I have been thinking that it could be the SI joint even though the first shot was not super-effective. May try another one for lack of good options.

Hips should not be going bad at 30 and problems should've shown up on MRI and x-ray.

I have asked about MS but no signs of it on MRIs.

Anything is possible but Sjogren's symptoms are not ringing any bells.

I am getting tired of hearing doctors say that they have bascially done all they can do - everything looks normal. I do not think they believe me when I tell them that I am not going to make it another 5 years like this.
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Old 08-07-2012, 05:08 PM   #44
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I'm so sorry to hear you're in such pain and a reason can not be found. I know what it's like to have chronic pain. Fortunately, I no longer suffer.

If you have not done so, please look into seeing a Pain Management Specialist. Mine was wonderful...I highly recommend it.
There's no need to complicate, our time is short..
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Old 08-07-2012, 05:41 PM   #45
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I feel so sorry for you and I hope you can get to the bottom of your problem. I had blinding back pain for a year so I know what pain does to your quality of life. Not fun.

A girlfriend of mine had been having pelvic pain for the past 8 years. There was pain, tightness and tugging in her abdominal area. She tried every kind of doctor and therapy. Often she felt they felt it was all in her head. She was prescribed a lot of meds.

She heard a dermatologist on a local radio show and made an appointment to see him. He found something immediately. She had had a tummy tuck after her hysterectomy 8 years ago and the anchors and "fishing line" her surgeon installed was not appreciated by her body and was apparently too tight thus the pain, tightness, and tugging feeling in her abdomen. He told her he couldn't guarantee removing the hardware would solve her problems but we were pretty sure this was going to do it.

Her surgery was Friday and it was a total success. All the pain, tightness and feeling of tugging was gone! I've only talked to her on the phone but the joy in her voice was amazing. Eight years of searching and she finally has a resolution!
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Old 08-07-2012, 07:08 PM   #46
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Sorry you still have this problem.I agree with the recommendation of a pain physician .

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