I am a retired physician, and I never saw a patient with sarcoidosis, because it wasn't in my line of work. The only person I knew who had it was the wife of a physician colleague. Sarcoidosis is not a common disorder, so it is unlikely that you will find anyone with useful expertise on it in an internet forum focusing on retirement. I suggest you (a) discuss it with your physician; (b) search for a support group and (c) consult your local university librarian, who can help you with a literature search. Wishing you the best of luck.