First, so grateful I retired in May or I would have had to take a leave of absence...
Background : My 78 yo mom had acdf spinal surgery a month ago resulting in acute dysphagia. She was on TPN in the hospital for 3 weeks and then she and our family made the decision to put on a PEG tube. In the hospital a CNA laid hands on her (pushed hard on her chest told her her roommate was trying to sleep) and was menacing.
We complained and she was moved to a private room. This traumatized her to the point we had to be there 24/7. After 4 weeks in hospital she is now in rehab in SNF getting speech, PT, OT so she can get strong enough to come home, hopefully using bolus (she's on a continual feed now) and continue therapies until her swallow issues resolve. She is still traumatized by all that has happened (no food going on 5 weeks, the hospital incident). She is still terrified tho the folks at the rehab have been fine with her. I feel like some hospital delerium may be setting in.
It's been horrible, her mind is good but I feel like she's inching toward a breakdown.
We are trying to let the folks there do their jobs, but there is a lot of downtime. After the hospital experience we are very wary, and mom does have a tendency to sometimes refuse things when offered, only to change her mind. She's just so fearful and untrusting now bc of this botched result.
Has anyone else dealt with this "side effect" of acdf surgery. How long did it take (if ever) to resolve? Was the transition from hospital to rehab just a traumatic? Tips on what we can do to make it easier? We've tried to be there as much as possible without hovering, staying positive etc. I thought she would be happier but she seems more miserable and depressed. I understand, this all happened to her and she feels helpless.... We are all heartbroken for her. My dad is same age and healthy but having trouble coping too with this unintended consequence from a surgery that was supposed to help her..
Thanks for reading... .
Background : My 78 yo mom had acdf spinal surgery a month ago resulting in acute dysphagia. She was on TPN in the hospital for 3 weeks and then she and our family made the decision to put on a PEG tube. In the hospital a CNA laid hands on her (pushed hard on her chest told her her roommate was trying to sleep) and was menacing.
We complained and she was moved to a private room. This traumatized her to the point we had to be there 24/7. After 4 weeks in hospital she is now in rehab in SNF getting speech, PT, OT so she can get strong enough to come home, hopefully using bolus (she's on a continual feed now) and continue therapies until her swallow issues resolve. She is still traumatized by all that has happened (no food going on 5 weeks, the hospital incident). She is still terrified tho the folks at the rehab have been fine with her. I feel like some hospital delerium may be setting in.
It's been horrible, her mind is good but I feel like she's inching toward a breakdown.
We are trying to let the folks there do their jobs, but there is a lot of downtime. After the hospital experience we are very wary, and mom does have a tendency to sometimes refuse things when offered, only to change her mind. She's just so fearful and untrusting now bc of this botched result.
Has anyone else dealt with this "side effect" of acdf surgery. How long did it take (if ever) to resolve? Was the transition from hospital to rehab just a traumatic? Tips on what we can do to make it easier? We've tried to be there as much as possible without hovering, staying positive etc. I thought she would be happier but she seems more miserable and depressed. I understand, this all happened to her and she feels helpless.... We are all heartbroken for her. My dad is same age and healthy but having trouble coping too with this unintended consequence from a surgery that was supposed to help her..
Thanks for reading... .