I stumbled across a small book-- almost a pamphlet-- that's way outside my comfort zone. Very good read.
The non-profit that oversees fundraising for the USS ARIZONA Memorial is pretty profitable. For that reason, and some other strange reason lost in the sands of state & national politics, it also handles the fundraising for Kalaupapa National Historical Park. So I asked spouse for something to read about that community.
The book is "Olivia: My Life of Exile in Kalaupapa". It's the journal of Olivia Robello Breitha, who was born in 1916. She wrote the book in 1988 yet it's in a number of libraries and it's still sold on Amazon. She put out a video in the 1990s, but I think she's passed on.
Olivia was diagnosed with Hansen's disease at the age of 18. For the next three years she was essentially quarantined to an Oahu hospital under the era's public health laws. There was not an effective treatment for Hansen's disease at that time, but there was the same fear & prejudice that we've seen when 1980s HIV/AIDS was first spreading. Same as 1940s/1950s polio epidemics. Probably the same as the Great Influenza and yellow fever epidemics. Only in this case, Hansen's is for life. Fear of contagion was rampant.
When she left her hospital quarantine one too many times (to visit family or to watch a movie), she was sent to Kalaupapa. It's thought that Hawaiians were exiled there before Western contact, and this practice continued with all Hawaii residents in the 18th-20th centuries. Even with the "rule of law" and "civil rights", someone diagnosed with Hansen's disease during the Roosevelt administration could still be taken into custody by "bounty hunters" and forcibly sent to the hospital... if the community didn't ostracize and exile them first. Of course the direct descendant of that era's attitude was the WWII internment camp.
Even in the 1930s Kalapupapa was an unpleasant and authoritarian place. Nobody protested against the excesses of the public-health laws or advocated for patient's rights. An effective treatment wasn't developed until WWII's sulfa drugs, and even that didn't resolve all the symptoms.
Yes, there are still a few Kalaupapa residents living there, even though their Hansen's symptoms have been in remission for decades. Other former residents have moved back out into the community, although there's not as much support for them there as at Kalaupapa. There's actually a bookstore in the park selling memorial merchandise (and this book). The bookstore's employees use a legal pad instead of the Internet-ready cash register. Their bone-degraded twisted hands can't operate a keyboard very easily, and Kalaupapa does not have reliable Internet access. They actually fax over their legal-pad "transaction log" once a week to the Pearl Harbor staff to enter into the inventory system.
Olivia never completed more than a sixth-grade education, but she writes very well and has been thinking about the issues for a long time. It's a chilling book, and it reveals a side of Hawaii that I've never known. If you've been to Hawaii's happy places then it's worth a read. If you've never been here... then I'd probably hold off reading it until after your first visit.