Breast cancer

There is a difference between whining and expressing. You’re not whining, you’re just expressing the truth of what you’re going through.

You’re doing an amazing job of smiling thru this. Keep going!
I couldn’t agree more.
 
WR2 I think so many of us wish we could take some of your burden and we do look for you every day. Sending you very, very gentle cyber hugs {{{ }}} :flowers:
 
That sounds awful and I would be whining too. I really hope they can help you tomorrow. Holding a good thought for tomorrow.
 
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I continue to be amazed at your positive attitude. I am so sorry you are going through this problem with your legs too!
Hoping you get some good help at the wound clinic.
Years ago, silvadene cream was prescribed for leg wounds. I remember slathering it on then wrapping the legs from ankle to knee, every couple of days when I worked in the hospital.

Take care, and know we are all thinking of you.
What a blessing Frank is!
 
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You continue to be in my thoughts. The leg wounds sound awful. Hopefully once they are dressed they will be less painful. And good meds should also help.

Sending healing vibes.
 
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Wow. So sorry chemo and all that goes with it has been so hard on your body. I have always heard it’s no picnic but this really sounds tough. One day you will look back on this and say it was tough but well worth it when you are well and felling normal again. Hang in there and keep the updates coming.
 
Well, I learned all about what "wound care" means in 2024. It means, "Let's see how many sketchy looking strangers doing nothing we can get into the patient's house, poking and peering through everything she owns, wandering around her bedroom and everywhere else for no reason, while doing nothing and invading her privacy as much as possible".

Yes I'm cynical.

They did not even BOTHER to wash or rinse off the wounds on either leg. Just left the scabs, layers of dried lotion, and dried blood where they were. Not even a damp washcloth. They had a spray bottle of lidocaine and gave a couple of spritzes (missing the wound). No debridement. Then they put a one-size-fits-all elastic ("Ace" looking) bandage on the leg, covered it with a second one-size-fits-all bandage made of elastic white nylon webbing, and that was it.

Now, I have to call into their central office and make three appointments per week for skilled nursing to come back into my bedroom and change both elastic bandages (which could be done by a four-year-old if given the bandages).

The "doctor" did not understand that a week ago my legs were fine, even after being told repeatedly the whole time he was there. Thought it was chronic and needed more ultrasound scans. Hmm.

What a waste of insurance/Medicare money. :rolleyes:
 
Still here, thinking about you, praying for the best and feeling bad you have to go through this. Thanks for the update. I wish it were better news.
 
“Frank is still keeping my spirits up most of the time (except if/when I'm groaning in pain). All I can say is that if you have a "Frank" type person in your life, keep him/her close.”
A positive note lights up the dampen situation. Keep up the spirit.
 
Well, I learned all about what "wound care" means in 2024. It means, "Let's see how many sketchy looking strangers doing nothing we can get into the patient's house, poking and peering through everything she owns, wandering around her bedroom and everywhere else for no reason, while doing nothing and invading her privacy as much as possible".

Yes I'm cynical.

They did not even BOTHER to wash or rinse off the wounds on either leg. Just left the scabs, layers of dried lotion, and dried blood where they were. Not even a damp washcloth. They had a spray bottle of lidocaine and gave a couple of spritzes (missing the wound). No debridement. Then they put a one-size-fits-all elastic ("Ace" looking) bandage on the leg, covered it with a second one-size-fits-all bandage made of elastic white nylon webbing, and that was it.

Now, I have to call into their central office and make three appointments per week for skilled nursing to come back into my bedroom and change both elastic bandages (which could be done by a four-year-old if given the bandages).

The "doctor" did not understand that a week ago my legs were fine, even after being told repeatedly the whole time he was there. Thought it was chronic and needed more ultrasound scans. Hmm.

What a waste of insurance/Medicare money. :rolleyes:
Ugh, as an RN, this makes me furious! Cleaning and dressing oozing wounds is necessary for healing. No, you don't want to clean off scabs, but you do want to get rid of old blood, exudate, etc.
I hope your legs heal and you begin to feel better. If I was closer, I would come over and dress your legs for you! Hugs to you.
 
Your frustration is completely justified W2R. Sending good vibes your way. This too shall pass (easy for me to say I know since I feel fine).

America, land of the most expensive healthcare (that sometimes works pretty good and other times is completely ineffective and wasteful). Ugh.
 
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This makes me angry. My cousin is a traveling nurse who deals primarily with wound care. He is a "lone" nurse, no one with him. He does his work, takes notes and pics of the wound so he can chart later, and leaves.
 
Just checking in from the hospital where I have been admitted. My legs are worsening. Frank thinks (and I agree) that I need to get these legs taken care of ASAP, Priority One, so we are going to do whatever it takes to get the ball rolling. This is the first step.
 
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Sorry to read your legs are worsening. I hope the doctors are able to help you soon. Best wishes for a full recovery.
 
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Hugs to you, sounds like you are where you need to be right now.
Rest and let others help you!
Take care.
 
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OMG! All the crap you're having to deal with and now this?!! Hope the hospital gets it resolved pronto. Meanwhile sending healing thoughts your way.
 
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Yeah, your description of your legs and the lack of care you were given in the home were very concerning. I’m glad you’re in a more appropriate place hopefully with some people who know what they’re doing. Praying for a good outcome. Thanks for keeping in touch.
 
Unfortunately sometimes you have to take matters in your own hands. Hopefully the hospital physicians will get you headed in the right direction.
 
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Glad you are where someone can look after you. . . we are all sending good wishes and prayers.

I never realized such a thing was a possible problem.
 
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