About two weeks ago I was diagnosed with a rare genetic disorder that will require continuous treatment for the remainder of my life. This will effect my ER plans in two ways - first, the treatment is quite expensive, so I will be uninsurable except through state high-risk pools and guaranteed issue states like NY, NJ, ME, VT. Secondly, I will be tethered to a single geography because the treatments are weekly. The second is a bigger deal for me, as I have always been an inveterate traveler. On this second point there may be light at the end of the tunnel as a self-administered treatment option is in Phase III clinical trials.
So having this diagnosis (which includes a reduced life expectancy) makes me want to accelerate my ER plans - possibly even retiring now, which we could do if we leave NYC. So I'm trying to figure out where we'll go. Insurance availability and cost will heavily influence our decision.
Anyway, a couple of questions...
Has anyone priced out individual plans in NY, NJ, ME, or VT? I understand these are the states where individual plans must take all comers and cant price-differentiate among pre-existing conditions, therefore it would seem the costs would be pretty standard or maybe variable by age.
I'm sure it varies by state, but, in general, how do high-risk pool plans work? I know there are state subsidies involved, but are they means-tested? Do high-risk pools have a single price for all or do they price-differentiate among pre-existing conditions?
Thanks for any help you can provide.
So having this diagnosis (which includes a reduced life expectancy) makes me want to accelerate my ER plans - possibly even retiring now, which we could do if we leave NYC. So I'm trying to figure out where we'll go. Insurance availability and cost will heavily influence our decision.
Anyway, a couple of questions...
Has anyone priced out individual plans in NY, NJ, ME, or VT? I understand these are the states where individual plans must take all comers and cant price-differentiate among pre-existing conditions, therefore it would seem the costs would be pretty standard or maybe variable by age.
I'm sure it varies by state, but, in general, how do high-risk pool plans work? I know there are state subsidies involved, but are they means-tested? Do high-risk pools have a single price for all or do they price-differentiate among pre-existing conditions?
Thanks for any help you can provide.