Blueskies123. I so get it. The greatest gift someone can give me is acceptance. I look fine and sometimes I seem fine(although that is usually an act..there’s never a day that I feel fine, but some are better than others). I read on a couple of support groups and that helps a lot to not feel so isolated.
I have a lot of people around me who don’t recognize it as an illness. Who feel I am faking. Who think it is just the minor annoying aches and pains of life. Who think I am seeking attention Believe me if I was I’d do it a different way. Who don’t get that some days I can do something and the next day I’m in bed with heat or ice all day.
I’ve had doctors ask if I’m seeking drugs. That it’s all in my head. My current dr said “you know some of us don’t even think this is a real disease”. To which I asked “do you?” There was a pause but he said he did. It’s a fairly small town and I don’t have many options, since no one really treats it I just don’t talk about to the dr. I find it hard to sort out wether my say chest pain is fibromyalgia or am I having a heart attack. Figure I’ll miss something big.
Keeping a routine seems to help. No more erratic sleeping like staying up till 3am reading a book. Fall is typically a flare time for me. Ive been meeting friends on Monday evenings through the summer at a park. I couldn’t go Monday because it was a particularly bad day. I was really bummed because there aren’t many weeks left that we can meet before it gets too cold and Covid stops us from meeting inside. Disappointing! Viruses really knock me for a loop. Hope I don’t have to find out how I would do with Covid.
I think fibromyalgia played a big roll in my divorce many years ago. I wasn’t the person he signed up for
I have a lot of people around me who don’t recognize it as an illness. Who feel I am faking. Who think it is just the minor annoying aches and pains of life. Who think I am seeking attention Believe me if I was I’d do it a different way. Who don’t get that some days I can do something and the next day I’m in bed with heat or ice all day.
I’ve had doctors ask if I’m seeking drugs. That it’s all in my head. My current dr said “you know some of us don’t even think this is a real disease”. To which I asked “do you?” There was a pause but he said he did. It’s a fairly small town and I don’t have many options, since no one really treats it I just don’t talk about to the dr. I find it hard to sort out wether my say chest pain is fibromyalgia or am I having a heart attack. Figure I’ll miss something big.
Keeping a routine seems to help. No more erratic sleeping like staying up till 3am reading a book. Fall is typically a flare time for me. Ive been meeting friends on Monday evenings through the summer at a park. I couldn’t go Monday because it was a particularly bad day. I was really bummed because there aren’t many weeks left that we can meet before it gets too cold and Covid stops us from meeting inside. Disappointing! Viruses really knock me for a loop. Hope I don’t have to find out how I would do with Covid.
I think fibromyalgia played a big roll in my divorce many years ago. I wasn’t the person he signed up for