Dementia, Parkinson's, etc. Neurological diseases are expensive to treat mainly because the person can easily live for 8-12 years vs. other diseases.
We chose Type-A, nonprofit Continued Care Retirement Community (CCRC) with A financial rating by Fitch so we are at peace. A or higher rating and nonprofit status are important to the financial health of the CCRC. Type-A means that you do not need long term care insurance. If and when you need medical care like assisted living, nursing home, Demita care, or Hospice you will get that at no extra cost, as long as you need it. The cost is covered in your monthly cost. Type-B and Type-C will charge the medical cost either at a discounted rate or at the market rate. And as you know Medical cost increases every year. In NJ it was $125K/year as the median for semi-private room per person. Go to Genworth's website to see the median cost in your state today and in the future.
Medicare does not cover this cost. Medicaid has a lookback period of 5 years so one must have emptied the assets and does not have more than $2,000 in assets etc., rules so tough to get that assistance. And CCRC will not admit anyone who has neurological disease symptoms, so it is important to plan ahead.
I wrote an article about what is CCRC, why we decided to move to a CCRC, and why we chose Willow Valley Communities as our CCRC in Lancaster, PA.
US News did a survey of 15,000+ nursing homes and ~2,000 CCRCs in the nation and chose the top 400. They chose forty-five top CCRC. 18 out of the top 45 (40%) are in PA and Willow Valley is rated number 1.
https://docs.google.com/document/d/1TkRo92IWiiSWGh6QrfqN-YDpq0ge34HLmz0-zvkYnU4/edit