Hi, and to all who care and offer encouragement, thankyou. I will give the latest straight from the horses mouth since I've privately chatted with a few posters. Things have been very dynamic and what I thought I knew one day, further results have negated.
I came to SF for cardiologist with great credentials. Cancer quickly reared it's ugly head and I seldom see anyone by my oncologists.
July 5, met with Oncologist.
July 12, complete bone scan and CT scan of abdomen.
--Findings, 2 cm mass on original cancerous kidney, 3 cm mass attached to psoas muscle along spine, 2 masses in lower right lung, 1 mass in liver (hummm), 2 nodules in upper left lung. Some "uptake" of radioactive dye in lower rib osseous material.
Aug 15, MRI of abdomen
--Comparison findings, all the same as above but mass attached to psoas muscle was fastest growing.
Sep 8, Needle Biopsy of Psoas muscle mass.
--Finding 10 cc of purulent material removed (pus) and real-time pathogist in operating room found bacterial infection.
Sep 9. Oncologist calls to say infection is serious "Glucose nonfermenting Gram negative rod". Stay close to hospital.
Sep 13. Oncologist confirms mocrobiology report of "Alkaline Pseudomonas" with preperation to be made for 2 week dual anti-biotic IV treatment. Delay due to lack of Interventional Radiologist to insert drainage. Again caution, stay near hospital "this infection can be fatal within 6 hours of entering the blood stream".
My last OAP blog post was because I was heading to Mayo in Rochester after much help and encouragement from a poster on this board who has been my rock. I should have been on a 6AM flight this morning but the oncologist said that it was very risky.
Just thought I'd post and make things clear. I'm as determined as ever. Will not bow myself to nothing.