I apologize for the length of this rant, but my pet peeve is really driving me nuts the past few months. Docs, nurses and office staffs who are either too burned out, overwhelmed with patients or lacking the detail-oriented skills to make sure every patient gets accurate, complete instructions about a brand-new med, treatment protocol or condition.
I've started on new protocols or been sent for labs/imaging that first require stopping something else (supplements above teams already knew I was taking as they were in my file) or following specific prep steps/precautions.
The only way I knew? Barraging the doc, nurse or office team with a ton of questions after they were ready to send me on my way. They didn't volunteer half this info. I had to pull it out of them 1 question at a time. These are not "common sense" things most patients would know - or trivial details either - they impacted test results or treatment plan outcomes.
It's like too many providers assume everyone knows stuff that 99% of patients new to the treatment likely don't. Or maybe they just forget to mention some details because they've been doing this too long? I wish there were strict "preflight" checklists like pilot and maintenance crews have. "STOP! Make sure you tell patient, x, y, z before they leave".
I am always worried that I didn't know to ask something I should have. I overthink everything and sink hours into respected sites like Johns Hopkins and Mayo, poring thru articles & patient forums to learn from other patients' experiences. But what about all the patients who aren't OCD and won't spend hours on research? How many end up in ER and/or suffering poor outcomes that could have been easily prevented?
I've seen this as a patient and as a caregiver - during office visits & hospital stays - from more than one provider. Has anyone else struggled with this or do I just have bad luck/judgement at picking providers?